Here is some interesting information for DES daughters who have had diagnosis of clear cell adenocarcinoma of the vagina/cervix (CCA).The Center for Analysis for Rare Tumors (CART-WHEEL) is a project by the Royal Melbourne Hospital to study different kinds of rare tumors. People from all over the world are invited to submit information about about their particular tumor so that researchers can develop new insights into these understudied tumors and this may hopefully lead to better treatments.
You can read all about CART-WHEEL and register for participation in this research study at www.cart-wheel.org
For further information you can contact:
CART-WHEEL
BioGrid Australia
6 North, Main Building
Royal Melbourne Hospital
Grattan St, Parkville 3050
VIC, Australia
Ph: +61 3 93423167
Email: contact@cart-wheel.org
IMPORTANT MEMO
Australian DES daughters diagnosed with CCA are urged to self-report their cases to BOTH the Adverse Drug Reactions Unit (www.tga.gov.au/adr/bluecard.htm) and the DES Cancer Registry (http://obgyn.uchicago.edu/registry.html).
DES Action Australia-NSW knows of instances where cases have gone unreported by health care providers in Australia. Case reports are crucial to knowing the magnitude of the DES exposure problem in our country.
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